- Genetics Education Materials For School Success (GEMSS): The aim of GEMSS is to assure all children with genetic health conditions succeed in school-life. Children who have genetic conditions, about 1 in 20, are members of neighborhood schools across the country. GEMSS encourages collaboration between families, school, and medical professionals. gemssforschools.org
- Center for Parent Information and Resources | Your Central Hub for Parent Centers Serving Families of Children With Disabilities (parentcenterhub.org) The Center for Parent Information and Resources is a central hub with information about Parent Training and Information Centers (PTIs) and Community Parent Resource Centers (CPRCs). PTIs, funded through the federal Individuals with Disabilities Education Act (IDEA) help families understand special education services for CYSHCN to age 22. CPRCs help families who need additional language supports
- National Association of Special Education Teachers: Genetics in Special Education Series (naset.org)
- NCC Resource Repository (ReRe) is a public access database containing resources for patients, genetics providers and other healthcare providers, public health workers, educators, policymakers, and insurers. The resources were created by the National Coordinating Center, the Regional Genetics Networks, the National Genetics Education and Family Support Center, and other partners. It is searchable by topic, intended audience, and by keyword search.
https://nccrcg.org/resources/