NYMAC 2024 Virtual Conference

Spanish Interpretation provided by Equal Access Language Services, LLC

Planning Committee

Patricia Bish, BS

• Project Manager, Ferre Institute, Inc.
• NYMAC Director of Communications & IT

Joann Bodurtha, MD, MPH, FACMG

• Professor of Genetic Medicine, Pediatrics and Oncology in the McKusick-Nathans Department of Genetic Medicine at the Johns Hopkins School of Medicine with appointments in the Department of Health, Behavior and Society in the Bloomberg School of Public Health and the School of Nursing.
• NYMAC Project co-Director

Alissa Bovee Terry, ScM, CGC

• Independent Consultant to NYMAC
• NYMAC Project Manager & Telegenetics Navigator

Michele Caggana, Sc.D., FACMG

• Deputy Director of the Division of Genetics, Chief of the Laboratory of Human Genetics, and Director of the Newborn Screening Program at the Wadsworth Center, NYS DOH.
• NYMAC Project co-Director

Cheyla Clark, MS, CGC

• Genetic Counselor
• University of Texas Southwestern Medical Center of Dallas

Luba Djurdjinovic, MS

• Director, Genetic Counseling Program, Ferre Institute, Inc.
• NYMAC Project Administrator

Andrea Durst, MS, DrPH, LCGC

• Assistant Professor, University of Pittsburgh
• NYMAC Advisory Committee Chair

RaeLynn Forsyth, MD

• Assistant Professor, University of Pittsburgh

Maria Isabel Frangenberg, BA

• NYMAC Consultant

Enrique Lopez, MS, CGC

• Genetic Counselor
• Saint Joseph’s University Medical Center

Melissa Raspa, PhD

• RTI International
• NYMAC Evaluation Consultant

Lisa Richard

• SWA Regional Network Coordinator, Rural Outreach Specialist, Center for Family Involvement, Virginia Commonwealth University

Roseani Sánchez Algarín, MA

• Project Coordinator, Family Voices National
• NYMAC Consultant

Radhika Sawh, MS, CGC

• Genetic Counselor
• NYMAC Consultant

Jerry Vockley, MD, PhD

• Cleveland Family Endowed Chair in Pediatric Research, Professor of Human Genetics, University of Pittsburgh Chief of Genetic and Genomic Medicine, Director of the Center for Rare Disease Therapy, UPMC Children’s Hospital of Pittsburgh

Presenters

Alissa Bovee Terry, ScM, CGC

• Independent Consultant to NYMAC
• NYMAC Project Manager & Telegenetics Navigator

Ashley Bricker, CPACC, ADS

• Parent Advocate

Jeffrey Brosco, MD, PhD

• Director, Division of Services for Children with Special Health Needs, Maternal and Child Health Bureau, HRSA

Fred Brown, MFA

• Erica Marx Coaching

Michele Caggana, Sc.D., FACMG

• Deputy Director of the Division of Genetics, Chief of the Laboratory of Human Genetics, and Director of the Newborn Screening Program at the Wadsworth Center, NYS DOH.
• NYMAC Project co-Director

Cheyla Clark, MS, CGC

• Genetic Counselor
• University of Texas Southwestern Medical Center of Dallas

Maria Isabel Frangenberg, BA

• NYMAC Consultant

Rhonda Jackson

• Public Health Advisor HRSA/ Region 3, Office of Intergovernmental and External Affairs

Coralaidee Jimenez Burgos

• Family Representative Title V, CSHCN

Enrique Lopez, MS, CGC

• Genetic Counselor
• Saint Joseph’s University Medical Center

Danielle Louder

• Director, Northeast Telehealth Resource Center, Co-Director, MCD Public Health

Erica Marx, MS

• Erica Marx Coaching

Marybeth McAfee, MA, GC

• Director of Medical Affairs, National Organization for Rare Disorders

Donna Messersmith, PhD

• Provider Education Specialist, NHGRI

Shruti Mitkus, PhD

• Director, Genetic Education, Global Genes

Doson Nguyen

• Legislative Affairs Manager, National Rural Health Association

Germaine Powell, MA

• President of Virgin Islands Sickle Cell Parent Support Group

Melissa Raspa, PhD

• RTI International
• NYMAC Evaluation Consultant

Lisa Richard, MS

• SWA Regional Network Coordinator, Rural Outreach Specialist, Center for Family Involvement, Virginia Commonwealth University

Roseani Sánchez Algarín, MA

• Project Coordinator, Family Voices National

Radhika Sawh, MS, CGC

• Genetic Counselor
• NYMAC Consultant

Lloyd Sirmons

• Director Southeastern Telehealth Resource Center

Mabel Thomas, MS, CGC

• Genetic Counselor and Consultant

Kathy Wibberly, PhD

• Director, Mid-Atlantic Telehealth Resource Center, Karen S. Rheuban Center for Telehealth, University of Virginia School of Medicine

Marc Williams, MD

• Professor and Director Emeritus Department of Genomic Health Geisinger

McKenzie Wood, BS

• Genetic Counseling Student, Columbia University

Accredited Continuing Education Information:

CME Educational Credits:

Accreditation

This activity has been planned and implemented in accordance with the accreditation requirements and policies of the Accreditation Council for Continuing Medical Education (ACCME) through the joint providership of the American College of Medical Genetics and Genomics (ACMG) and New York Mid-Atlantic Caribbean Regional Genetics Network (NYMAC). The ACMG is accredited by the ACCME to provide continuing medical education for physicians.

Credit Designation

The American College of Medical Genetics and Genomics designates this live (virtual) activity for a maximum of 11.25 AMA PRA Category 1 Credits™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

Claiming your Educational Credits

Complete the activity and carefully complete the evaluation form. The deadline to claim educational credits is May 24, 2024. Educational credit requests after this date will not be accepted.

Learner Data Consent

ACMG Education reports learner data to respective agency boards and you will be asked for consent during the evaluation process. Your compliance with deadlines and completing evaluations are part of the process in meeting learner needs and ACMG’s education mission.

Accredited Continuing Education Financial Disclosure

The American College of Medical Genetics and Genomics (ACMG) is accredited by the Accreditation Council for Continuing Medical Education (ACCME) to provide Accredited Continuing Education (ACE) for physicians. ACMG is an organization committed to improvement of patient care and general health by the incorporation of genetics and genomics into clinical practice.

ACMG has implemented the following procedures to ensure the independence of ACE activities from commercial influence/promotional bias, the Accreditation Council for Continuing Medical Education (ACCME) requires that providers (ACMG) must be able to demonstrate that: 1) everyone in a position to control the content of an ACE activity has disclosed all financial relationships that they have had in the past 24 months with ineligible* companies; 2) ACMG has implemented a mechanism to mitigate relevant financial relationships; and 3) all relevant financial relationships with ineligible companies are disclosed to the learners before the beginning of the educational activity. The learners must also be informed if no relevant financial relationships exist.
*Ineligible companies are defined as those whose primary business is producing, marketing, selling, re-selling, or distributing healthcare products used by or on patients.

ACMG Education Policies

Please review the policies below regarding the ACMG Education program

• Financial Disclosures and Mitigation Procedure
• ACMG Content Validation Policy
• ACMG Content Branding Policy
  

Disclaimer

ACMG educational programs are designed primarily as an educational tool for health care providers who wish to increase their understanding of the application of genomic technologies to patient care. The ACMG does not endorse or recommend the use of this educational program to make patient diagnoses, particular by individuals not trained in medical genetics. Adherence to the information provided in these programs does not necessarily ensure a successful diagnostic outcome. The program should not be considered inclusive of all proper procedures and or exclusive of other procedures and that are reasonably directed at obtaining the same results. In determining the propriety of any specific procedure or, a healthcare provider should apply his or her own professional judgment to the specific clinical circumstances presented by the individual patient or specimen.

Questions regarding educational credits should be directed to education@acmg.net .

All of the relevant financial relationships listed for these individuals have been mitigated.