As part of NYMAC and DC’s Advocates for Justice and Education, Inc.’s “DC Families sharing their genetics journey video project”, we are inviting DC families to share their stories about how genetics appointment helped them. Our goal is to raise awareness about genetics in DC and let other families know what to expect and help them feel more comfortable in starting their genetics journey. Let’s work together to help families explore how genetics can help them and their families.

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Learn more about the project from DC Family Leader LaJoy Johnson Law:

Sign up to share your family’s genetic journey story:
https://tinyurl.com/GeneticsEnglish(link is external)

Regístrese para compartir su historia del viaje genético de su familia:
https://tinyurl.com/GeneticsSpanish(link is external)

Contact Advocates for Justice and Education with questions: lajoy.johnson-law@aje-dc.org

Resources for Children and Families with Genetic Conditions in DC:

Advocates for Justice and Education (AJE): Advocates for Justice and Education seeks to empower families, youth, and the community to be effective advocates to ensure that children and youth, particularly those who have special needs, receive access to appropriate education and health services. Home – Advocates for Justice and Education (aje-dc.org)(link is external)

NY Department of Health (DOH): DC Health promotes health, wellness and equity, across the District, and protects the safety of residents, visitors and those doing business in our nation’s Capital. | doh (dc.gov)(link is external)

NY Newborn Screening: All babies should be screened at birth for metabolic and hearing problems so that they can get the services they need as early as possible. Newborn Screening | doh (dc.gov)(link is external)

DC Help Me Grow: HMG DC provides a free, confidential, centralized telephone access point that links every family in DC to a care coordinator that will answer questions and concerns about their pregnancy or child’s development, connect them with services in their community, and follow-up to ensure a connection is made. Help Me Grow DC | doh(link is external)

DC Strong Start DC Early Intervention: The Strong Start DC Early Intervention Program serves as the single point of entry for infants and toddlers in Washington DC whose families have concerns about their development. Strong Start DC Early Intervention Program (DC EIP) | osse(link is external)

DC Special Education Resources: Special Education Resource Hub: Special Education Resource Hub: What Families & Students Need to Know this Year | osse (dc.gov)(link is external)

DC Department on Disability Services: The Department on Disability Services (DDS) provides the residents of the District of Columbia with information, oversight and coordination of services for people with disabilities and those who support them. | dds (dc.gov)(link is external)

DC Children and Youth with Special Health Care Needs (CYSHCN) Program (CYSHCN):
DC Children and Youth with Special Health Care Needs (CYSHCN) Program (CYSHCN): The mission of the Children and Youth with Special Health Care Needs (CYSHCN) Program is to improve the health outcomes for children and youth with special health care needs by ensuring their access to coordinated primary and specialty health care and other services in partnership with their families and community organizations. Program services include: Family Navigation Services, Children and Youth with Special Health Care Needs (CYSHCN) District-wide Advocacy, Health Care Transition from Pediatric to Adult Services, District of Columbia Parent Information Network, and Sickle Cell Adolescent Transition Case Management. Children and Youth with Special Health Care Needs | doh (dc.gov)(link is external)

DC Support for Women and Infant Health: DC’s Perinatal Health programs strive to eliminate preventable infant deaths and reduce preterm and low-birth-weight births: improving preconception health; assuring high-quality healthcare; strengthening families as they prepare and care for children; and, promoting safe and healthy environments. Perinatal Health | doh (dc.gov)(link is external)

DC Medicaid: DC Medicaid is a healthcare program that pays for medical services for qualified people. It helps pay for medical services for residents with low-income and those with disabilities, including many genetic conditions. For those eligible for full Medicaid services, Medicaid pays healthcare providers. Medicaid | dhcf (dc.gov)(link is external)

Genetics Clinics in DC

Pediatric Clinics

Prenatal Genetics Clinics

Cancer Genetics Clinics

Cardiovascular Genetics Clinics

All DC Genetics Clinics: Find a Genetics Clinic | NYMAC | Regional Genetics Network (nymacgenetics.org)

Not finding what you’re looking for?  Use this link to search our nationwide list of genetics clinics: Find a Genetics Clinic | NYMAC | Regional Genetics Network (nymacgenetics.org)

Explore other genetics resources for patients and families: Patients & Families | NYMAC (nymacgenetics.org)

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