• Resources

NYMAC Project Summary Flyer
NYMAC Project Summary Flyer (Español)
National Coordinating Center

NYMAC Leadership Team

NYMAC is led by genetics providers from the NYS Department of Health, John Hopkins University, the University of Pittsburgh, the Ferre Institute and evaluators from RTI International. Our region includes the District of Columbia, Delaware, Maryland, New Jersey, New York, Pennsylvania, Puerto Rico, US Virgin Islands, Virginia, and West Virginia. NYMAC is one of seven Regional Genetics Networks across the country funded by a federal (HRSA) grant.

Michele Caggana, ScD, FACMG

Project co-Director

Read Bio

Joann Bodurtha, MD, MPH, FACMG

Project co-Director

Read Bio

Luba Djurdjinovic, MS

Project Administrator, NYMAC/Director Genetic Counseling Program, Ferre Genetics

Alissa Bovee Terry, ScM, CGC

Project Manager and Telegenetics Navigator

Patricia Bish, BS

Director of Communications & IT/Project Manager, Ferre Institute

Andrea Durst, MS, DrPH, LCGC

Assistant Professor, University of Pittsburgh/Advisory Committee Chair, NYMAC

Melissa Raspa, PhD, RTI International

Evaluation Consultant

Oksana Kutsa, MS, RTI International

Evaluation Consultant

NYMAC Advisory Committee

Andrea Durst, MS, DrPH, LCGC

Assistant Professor, University of Pittsburgh/Chair, NYMAC Advisory Committee

Barbara Falkman

Public Relations Specialist,  Suffolk County Department of Health Services, Division of Services for Children with Special Needs

Brenda Figueroa

Director, SPAN F2F and P2P of NJ, Parent Group Specialist START

Danielle Louder

Director – Northeast Telehealth Resource Center, Co-Director MCD Public Health

Elisa Muñiz, MD, MS, FAAP

Program Director, Fellowship Program in Developmental-Behavioral Pediatrics

Assistant Professor of Pediatrics at Albert Einstein College of Medicine

Rose F. Kennedy Children’s Evaluation and Rehabilitation Center 

Division of Developmental Medicine

The Children’s Hospital at Montefiore

TaraChandra Narumanchi, MD

Clinical Assistant Professor, Chief, Division of Genetics, Department of Pediatrics, WVU School of Medicine

Bruce L. Orr

Ability Advocates

Lin Perry, MPA

Family Advocate

Roseani Sánchez, M.Ed

Project Director, Family Voices National

Natasha Shur, MD

Children’s National Hospital, Washington, D.C.

Jerry Vockley, MD, PhD

University of Pittsburgh Cleveland Family Endowed Chair in Pediatric Research Professor of Human Genetics UPMC Children’s Hospital of Pittsburgh Chief of Medical Genetics Director of the Center for Rare Disease Therapy

Kathy H. Wibberly, PhD

Director, Mid-Atlantic Telehealth Resource Center, University of Virginia Center for Telehealth

Dana Yarbrough

Director, Center for Family Involvement, Virginia Commonwealth University

Contact Us

Find A Genetics Clinic