CDC resources on family health history
ACMG ACT Sheets and Algorithms contain guidelines for providers regarding positive newborn screening results, as well as specific scenarios in carrier screening, diagnostic testing, family history, secondary findings, and transitioning pediatric patients to adult healthcare.
NCC Resource Repository (ReRe) is a public access database containing resources for patients, genetics providers and other healthcare providers, public health workers, educators, policymakers, and insurers. The resources were created by the National Coordinating Center, the Regional Genetics Networks, the National Genetics Education and Family Support Center, and other partners. It is searchable by topic, intended audience, and by keyword search.
Deaf Community- How to Collect Family Health History: What’s Important? Youtube Video
My Family Portrait
Developed by the Surgeon General, My Family Portrait is a tool that can help families collect family health histories. It contains information and a form to fill out about your family health history, helps families understand their genetic inheritance and risk for disease, can be used to partner with medical professionals, and comes in several languages.