The National Coordinating Center (NCC) for the Regional Genetic Networks coordinates all 7 regional genetics networks in the country, including NYMAC. The NCC offers resources relating to healthcare policy https://geneticspolicy.nccrcg.org.policy-areas/ , including:
- NCC State and Federal Legislative and Regulation Tracking indicates genetics-related policies proposed through regulation or legislation in each state. It is searchable by state, by policy area, and sub-policy area.
- NCC State Medicaid Genetics Policies database is available to inform providers, patients, insurers, and state Medicaid agencies about whether specific genetic services are written into each state’s Medicaid policy, any coverage and criteria information that is available, fee schedules, and other relevant information.
- NCC Legislative, Insurance, and Finance Tracking (LIFT) Newsletter is published quarterly and contains information on legislative, insurance, and financing issues that affect healthcare delivery systems. It is available for download on the NCC website, or via email subscription.
Public Health Genetics Week Toolkit is a list of social media tools, fact sheets, and other resources free to use for Public Health Genetics Week.
CDC Tier 1 Genomic Applications Toolkit for Public Health Departments is available for public health departments, healthcare providers, insurance companies, and others to learn about Tier 1 applications. Because the toolkit continues to be updated and improved over time, there is also a list of recent changes and updates.
The Center for Connected Health Policy (CCHP)(external link) is a national nonprofit under the Public Health Institute, which was designated the National Telehealth Policy Resource Center in 2012. It provides information about telehealth policies, with resources including:
- Current state laws and reimbursement policies
- Legislation and regulation tracking
- COVID-19 telehealth coverage policies and state actions
The Association of Public Health Laboratories (APHL) Newborn Screening and Genetics include conferences and trainings, quality assurance information, and molecular resources, as well as reports and briefs, cutoffs and risk assessment methods and policy statements relating to newborn screening.
Association of Maternal and Child Health Programs (AMCHP) provides information about Title V, policy, advocacy, legislative alerts, and a legislative agenda.