Each state has its own Medicaid policies and each insurance company provides different levels of coverage, though some strategies may work well in general.
- Complex Child – Insurance and Medicaid is a feature article in an online magazine.
- Appeals: Appealing Funding Denials
From the Medical Home Portal, University of Utah
Age Group:Child, Teen/Young Adult
- Children’s Health Insurance
HealthyChildren.org
- Consumer Complaints Toolkit: Health Insurance Resources for Health Advocates, Health Providers and Enrollment Assisters
From Community Catalyst, Boston (June 2016).
- Family-to-Family Health Information Centers
Family-to-Family Health Information Centers are family-led centers that provide free, confidential assistance to families raising children and youth with special health care needs/disabilities. Knowledgeable staff help navigate complex systems of care and connect with needed services and supports. They can help families understand insurance appeals and provide additional resources to help. Find the F2F in your state .
- Family Voices
Family Voices is a national, nonprofit, family-led organization promoting quality health care for all children and youth, particularly those with special health care needs.
- Maneuvering Through the Maze , a Family Resource Guide for Families having Children with Special Health Care Needs and Disabilities. New Hampshire Family Voices
- Pathways to Reimbursement Success
Cambrooke Therapeutics (includes several LMN for medical food, seizure disorder, PKU and other metabolic conditions)
- Rare Toolkit: Navigating Health Insurance
From Global Genes, one of the leading rare disease patient advocacy organizations in the world
- Kaiser Family Foundation KFF (Kaiser Family Foundation) is a non-profit organization focusing on national health issues, as well as the U.S. role in global health policy. KFF develops and runs its own policy analysis, journalism and communications programs, sometimes in partnership with major news organizations.