- The Emergency Preparedness Toolkit for Genetic-Based Inherited Metabolic Disorders was developed by the SERN Consumer Alliance Emergency Preparedness Workgroup. The toolkit includes disorder-specific lists of supplies needed in case of emergency, as well as a general list of basic emergency preparedness supplies. It is available to be printed, posted, and shared:
- American College of Medical Genetics ACT Sheets and Confirmatory Algorithms provided detailed information about many of the conditions detected by Newborn Screening
- For Families — New England Consortium of Metabolic Programs The New England Consortium of Metabolic Programs brings together healthcare professionals at all levels involved in identifying and treating individuals with metabolic disorders. Consortium projects have included: developing acute illness materials for the treatment of metabolic disorders to be used by general practitioners and emergency room staff, and sponsoring social support events around New England.