
- Care Coordination: The Family Perspective (Midwest RGN)
There is no standard definition of Care Coordination. In this video, Region 4 Midwest Genetics Collaborative shares their definition and demonstrates that parents play an important role in coordinating care for their child. Key concepts of care coordination are shared along with examples of why they are important.
Care Coordination: The Family Perspective(link is external) (Youtube Video)
- Partnering with your Doctor: The Medical Home Approach
Partnering with your Doctor: The Medical Home Approach is a guide to help families connect with their doctor, other medical professionals, and caregivers through a medical home. The guide is intended to be a user-friendly, hands-on tool to support families to move forward in obtaining and providing a medical home for their child. The guide provides definitions, examples, and tools to use when working with a doctor to develop a medical home and demonstrates how to seek culturally effective, compassionate care. It also provides a list of resources and links to organizations that support families and the medical home concept.Now available in Spanish and Arabic. Please use the links below or contact us at info@region4genetics.org to request hard copies of guide.
Partnering with your Doctor: The Medical Home Approach (Spanish Version)
Partnering with your Doctor: The Medical Home Approach (Arabic Version)
- NYMAC-SPAN Medical Home Toolkit
- National Center for Medical Home Implementation(link is external)
- Got Transition(link is external)
- Nemours: Children’s Health System(link is external)
- Becoming an Adult: Deciding Where to Live(link is external) (Youtube Video)
- Becoming an Adult: Legal and Financial Planning(link is external) (Youtube Video)
- Becoming an Adult: What Can I Do After High School?(link is external) (Youtube Video)
- Becoming an Adult: Taking Responsibility for Your Medical Care(link is external) (Youtube Video)