April 26 – Day 1 Slides
- NYMAC Updates, Collaborative Opportunities, and Resources, Alissa Terry, ScM, CGC, Genetic Counselor, NYMAC
- Making strides locally: Progress on genetics access in your state, district or territory, Radhika Sawh, MS, CGC, Genetic Counselor, NYMAC Regional Genetics Network, Enrique Lopez, MS, CGC, Genetic Counselor, Saint Joseph’s University Medical Center, Cheyla Clark, MS, CGC, Genetic Counselor, University of Texas Southwestern Medical Center of Dallas
- Creating Culturally Responsive Resources and Translations, Roseani Sánchez, M.Ed, Project Director, Family Voices
- Cultural Humility: Lessons from NYMAC collaborations, Cheyla Clark, MS, CGC, Genetic Counselor, University of Texas Southwestern Medical Center of Dallas, Enrique Lopez, MS, CGC, Genetic Counselor, Saint Joseph’s University Medical Center, Maria Isabel Frangenberg, Bacata Global Engagement Firm, Amanda Bergner, MS, LCGC, Associate Professor of Genetic Counseling, Columbia University, Director, Columbia University Genetic Counseling Graduate Program, Alissa Terry, ScM, CGC, Genetic Counselor, NYMAC Regional Genetics Network
April 27 – Day 2 Slides
- Telegenetics Updates for your practice, Alissa Terry, ScM, CGC, Genetic Counselor NYMAC Regional Genetics Network, Moderator, Dr. Kathy H. Wibberly, PhD, Director, Mid-Atlantic Telehealth Resource Center, Karen S. Rheuban Center for Telehealth, University of Virginia School of Medicine, Lloyd Sirmons, Director Southeastern Telehealth Resource Center, Danielle Louder, Director, Northeast Telehealth Resource Center, Co-Director, MCD Public Health, Lin Perry, MPA, Parent/Family Advocate
- Genetics in Primary Care: A Vision for the Future of Precision Medicine, Dr. Elizabeth l. Kudron, MD, MPH, FAAP, Children’s Hospital Colorado, Colorado Center for Personalized Medicine, University of Colorado Anschutz Medical Campus
- Strategies to developing self-advocacy to improve outcomes in emergency situations, Radhika Sawh, MS, CGC, Genetic Counselor, NYMAC Regional Genetics Network
- Structural Racism in Genetics: Consequences and a Plan for the Future (1), Dr. Jessica Gold, MD, Medical and Biochemical Geneticist, Postdoctoral Research Fellow Children’s Hospital of Philadelphia, & Structural Racism in Genetics: Consequences and a Plan for the Future (2), Barbara Harrison, MS, CGC, Genetic Counselor, Howard University, Grace-Ann Fasaye, ScM, CGC, Senior Genetic Counselor, National Institutes of Health, National Cancer Institute, Center for Cancer Research, Genetics Branch,
- Evaluation and Quality Improvement in Genetics: Applications and Resources, Dr. Melissa Raspa, PhD, Evaluator RTI International, Oksana Kutsa, MS, Evaluator RTI International
- Solving difficult cases: Lessons from the Undiagnosed Disease Network and the Rare Genomes Project of the GREGoR Consortium & The NIH Undiagnosed Diseases Program Expansion to National and International Networks Dr. William Gahl, MD, PhD, Director, Undiagnosed Disease Program; Senior Investigator, Medical Genetics Branch; Head, Human Biochemical Genetics Section National Human Genome Research Institute, Dr. Anne O’Donnell-Luria, MD, PhD, Co-Director, Broad Center for Mendelian Genomics; Assistant Professor, Harvard Medical School; Physician, Division of Genetics and Genomics, Boston Children’s Hospital, Randie and David Harpell, Parent Advocates
- Putting it into Practice: Facilitated Planning for Meaningful Changes to Current Practice, Alissa Terry, ScM, CGC, Genetic Counselor NYMAC Regional Genetics Network
- Identifying Collaborative Partners Worksheet – NYMAC 2023 (Form – English)
- Identificando Socios Colaborativos – NYMAC 2023 (Forma – Español)