April 18 – Day 1 Slides (Bilingüe)
- Looking Back: The impact of NYMAC and what you can take away, Alissa Terry, ScM, CGC, Genetic Counselor, NYMAC, Melissa Raspa, Ph.D., Evaluator RTI International, Maria Isabel Frangenberg, Community Engagement Liaison, NYMAC, Erique Lopez, MS, CGC, Genetic Counselor, Univ. Texas Southwestern Medical Ctr. of Dallas, McKenzie Wood, BS, Genetic Counseling Student, Columbia Univ.
- Looking Forward: HRSA’s vision for CYSHCN and newborn screening, Jeffrey Brosco, MD, PhD, Dir. Division of Services for children with Special Health Needs, Maternal and Child Health Bureau, HRSA
- Cultivating Connections: Utilizing NYMAC resources and joining forces with local collaborators in your state/district/territory, Radhika Sawh, MS, CGC, Genetic Counselor, NYMAC, Erique Lopez, MS, CGC, Genetic Counselor, Univ. Texas Southwestern Medical Ctr. of Dallas, Cheyla Clark, MS, CGC, Genetic Counselor, University of Texas Southwestern Medical Center of Dallas
- Resources for Language Access, Roseani Sánchez, MEd, Project Director, Family Voices
- Resources for Rare Disease and Genetics: NORD, Global Genes, and NHGRI, Marybeth McAfee, MA, GC, Director of Medical Affairs, National Organization for Rare Disorders, Shruti Mitkus, PhD, Provider Education Specialist ISCC-PEG Co-Chair, GenomeEd Chair Education and Community Involvement Branch Division of Genomics and Society National Human Genome Research Institute, NIH, Donna Messersmith, PhD, Provider Education Specialist ISCC-PEG Co-Chair, GenomeEd Chair Education and Community Involvement Branch Division of Genomics and Society National Human
Genome Research Institute, NIH
April 19 – Day 2 Slides (Bilingüe)
- Developing a Productive and Collaborative Relationship to Change, Erica Marx, MS, Erica Marx Coaching, Fred Brown, MFA, Erica Marx Coaching
- Resources for Families with special healthcare needs at the national and local level: Family Voices and F2F’ssion Medicine, Pattie Archuleta, Project Director, Family Voices
- Resources and Genetics Practice Models for Rural Health, Marc Williams, MD, Professor and Director Emeritus Dept. Of Genomic Health Geisinger, Rhonda Jackson, Public Health Advisor HRSA/Region 3, Office of Intergovernmental and External Affairs (IEA), Doson Nguyen, Legislative Affairs Manager, National Rural Health Assoc.
- Advocating for Resources and Change: Harnessing The Power of A Story, Radhika Sawh, MS, CGC, Continental States Team Lead, NYMAC, Ashley Bricker, CPACC, ADS, Parent Advocate, Coralaidee Jiménez, Family Representative Title V, CSHCN, Germaine Powell, MA, President of the Virgin Islands Sickle Cell Parent Support Group
- Resources for telehealth, Kathy Wibberly, PhD, DirectorMid-Atlantic Telehealth Resource Ctr, Lloyd Sirmons, Director, Southeastern Telehealth Resource Ctr., Danielle Louder, Director, Northeast Telehealth Resource Ctr., Alissa Terry, ScM, CGC, Genetic Counselor, NYMAC Moderator, Lisa Richard, MS, SWVA Regional Network Coordinator Rural Outreach Specialist Va-LEND Trainee, Ctr for Family Involvement Virginia Commonwealth Univ.
- Looking Forward: Facilitated Workshop on Identifying Relationships and Resources for your Next Chapter, Alissa Terry, ScM, CGC, Genetic Counselor, NYMAC Moderator