Conozca al equipo NYMAC de Puerto Rico
Co-líderes
Dra. Norma Arciniegas
Pediatra, Ponce Health Sciences University
(Pediatrician, Ponce Health Sciences University)
Coral Jiménez
(Parent Advocate)
Verónica Abraham
NIH Fellow – Especialista en medicina familiar, NYMAC
(NIH Fellow – Family Physician, NYMAC)
Elinette Albino
Profesora de diagnósticos clínicos, Universidad de Puerto Rico
(Clinical Diagnostics Professor, University of Puerto Rico)
Donna Appel
Fundadora y directora executiva, HPS Network
(Executive Director and Founder, HPS Network)
Dra. Frances Vélez Bartolomei
Genetista
(Geneticist)
Yoldie Borrero
Madre, F2F de Puerto Rico
(Mother, F2F of Puerto Rico)
Hilda Cardona
Enfermera, HPS Network
(Nurse, HPS Network)
Dr. Simón Carlo
Genetista
(Geneticist)
Dra. Cristel Chapel
Genetista, Cernimiento neonatal
(Geneticist, Newborn Screening)
Dr. Alberto Santiago Cornier
Genetista
(Geneticist)
Dr. Wilfredo de Jesús
Pneumatólogo pediátrico
(Pediatric pulmonologist)
Jennie De La Mota
Madre, organización Febrero 29
(Mother, February 29 Organization)
Yolanda Rodríguez de León
Gerente – de enlace académico y impacto social, SER
(Manager – Academic Liaison and Social Impact, SER)
Aida Figueroa, MHSA, JD
Administradora, SER
(Administrator, SER)
María Isabel Frangenberg
Consultora para enlaces con la comunidad, NYMAC, Bacatá Global Engagement Firm
(Community Engagement Consultant, NYMAC, Bacatá Global Engagement Firm)
Celia Galán
Directora executive, APNI
(Executive Director, APNI)
Dra. Karen Martínez González
Decana del departamento de psiquitría, Universidad de Puerto Rico
(Chair of the Department of Psychiatry, University of Puerto Rico)
Sheila Hernández
Madre y fundadora de organización Febrero 29
(Mother and founder of February 29 Organization)
Gredia Huerta
Directora Sección, AAP de Puerto Rico
(Chapter Director, AAP of Puerto Rico)
Enrique Getulio Lopez
Asesor genético – Líder del equipo de Puerto Rico, NYMAC
(Genetic Counselor – Puerto Rico Team Lead, NYMAC)
Giannina López
Directora, F2F de Puerto Rico
(Director, F2F of Puerto Rico)
Nilda Morales
Presidente y CEO, SER
(President and CEO, SER)
Evelys Pérez Portalatín
Coordinadora de Servicios, Programa de enfermedades hereditarias
(Service Coordinator for Hereditary Conditions Program)
Ledith Restos
Profesora, Universidad de Puerto Rico – Cernimiento neonatal
(Professor, University of Puerto Rico – Newborn Screening)
Dra. Enid Rivera
Hematóloga, HPS network
(Hematologist, HPS network)
Roseani Sánchez
Directora de programas, Family Voices National
(Director of Programs, Family Voices National)
Sulay Rivera Sánchez
Directora asociada, Centro de enfermedades hereditárias de Puerto Rico – Cernimiento neonatal
(Associate Director, Puerto Rico Center for Inherited Diseases – Newborn Screening)
Marta Segarra
Director of Related Services, Puerto Rico Down Syndrome Organization
(Directora de servicios relacionados, Fundación Puertorriqueña Síndrome Down)
Alissa Bovee Terry
Gerente del programa de NYMAC
(NYMAC Program Manager)
Mabel Thomas
Asesora genética, NYMAC
(Genetic Counselor, NYMAC)