Contains an introduction to genetic counseling, including genetics education resources. Introduces information about cultural and linguistic competence.
Aims to reduce health disparities through in-person educational workshops, online continuing education opportunities, consulting, and promoting the infusion of cultural competence into healthcare and industry settings.
Programs/Opportunities in Genetic Counseling for Undergraduate Students
CHOP Research Institute Summer Scholars Program
UPenn and CHOP Genetic Counseling Summer Internship
Warren Alpert Alliance Program to Increase Diversity in Genetic Counseling
This article discusses the importance of cultural competence in the field of genetics. The authors discuss the ethno-cultural values of different cultures and races and how they impact patient responses to genetics services.
This lecture series from the National Human Genome Research Institute highlights how innovations in genomics research and technology may impact health disparities.
This systematic article review examined literature surrounding the ethical, social, and cultural issues surrounding delivery of genetic services. It was found that medical professionals are not appropriately educated on social issues surrounding genetics and patients have troubles accessing genetic services.
Creating a diverse workforce in the field of genetics is critical to making progress in research and health equity. This factsheet from NHGRI describes the importance of diversity in the workplace as well as guidance on how to create and maintain diversity in the field of genetics.
A large proportion of genetics research has been done in populations with mostly European ancestry. Increasing diversity in genomic research will allow for a better understanding of our population as a whole and will be better representative of our diverse world.
The Rare Disease Diversity Coalition was formed by the Black Women’s Health Imperative to bring attention to the burdens faced by people of color with rare diseases.
This article discusses and advises on how to effectively communicate with and counsel transgender patients and patients with a transgender family member.
MGPN’s creates a space for current and future ethnic minority medical genetics professionals to connect.
Building trust between genetics providers and minority communities is important in decreasing health disparities and increasing diversity in individuals receiving genetic testing.
This forum explores the history of inequalities in healthcare and expands on current disparities for minority groups. This resource is available to ACMG Members until May 2023.
Presentation slides from a CDC webinar on health disparities in implementation of genomic medicine.
Blog post from the CDC about genomics and health disparities for minority groups.
Involving minority communities in policy conversations surrounding genetics research is important to expanding genetics research to improve the health of all individuals. Creating a dialogue with minority communities is integral in the process of engaging these communities.
Tip sheet from the Every Life Foundation for Rare Diseases about the importance of advocacy in the minority rare disease community.
NIMHD invests in research and fosters collaborations and partnerships to promote and support evidence-based science to inform practice and policy. Its programs and initiatives provide a leading edge in enhancing the scientific knowledge base and designing interventions to improve health outcomes to reduce and ultimately lead to the elimination of health disparities.
Youtube video production by Expecting Health
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Email: NYMAC@ferre.org